This is Saxon, our energetic little man who was diagnosed with Cystic Fibrosis when he was a week old. We gathered together many friends and family members and created Strides for Sax. Our mission is to raise money and create awareness for the Cystic Fibrosis Foundation to find a cure for cf. This is all about Sax and our team's efforts for the cause. As of the creation of this blog, Saxon is 21 months old, has been hospitalized several times for pneumonia, and had undergone 3 surgeries since his first birthday.

Friday, April 26, 2013

Spring is finally here!!

It has been an odd spring so far.... especially considering we had a couple inches of snow only 3 days ago!!  Today it was FINALLY warm enough to turn off the heat and to open all the windows in the house.

I know I've been absent a bit from Bloggingland, but it's been crazy busy around here with doctor appointments, home school, and the house addition.  Sax is still working on home school stuff, but we have cut back a little bit and are focusing more on reading and learning words.  He's very independent and self-motivated though!!  I went to get his numbers workbook (which I had picked up at the dollar store) and found he had gone ahead and done a few pages all on his own!  I am so very proud of the work he has been doing and the effort he puts into it!!  He worries about missing out on fun or playtime, but I make sure he gets plenty of that.  Often he will work on his workbooks while his sister is doing her homework, so they are doing it together and he feels more like a big boy.

Since the weather was so nice today, we decided to walk to the park after lunch and play until Raine got done with school and we had to pick her up.  He loves going down the slide, and played on the swings for a while.  He also tried the monkey bars, which is pretty appropriate since he is quite the monkey!!!

When we got home from school, the two of them went out to play in the back yard since it's finally dried up a little bit.  Hopefully the clay won't stick to them too bad and the fresh air will wear them out.  If the weather is nice still tomorrow, I am thinking about taking the kids to the state park for a picnic since it sounds like daddy may have to work.

We are nearing completion on the house addition - the bathroom had a few more things it needs, the living room just needs trim and flooring, the mudroom and closet need paint, trim, and flooring (but they were intentionally left for last since everything had been piled in those 2 areas), and we still need to get the siding on the house.

On Monday Sax had to go in for a CT.  He had just finished his 4th round of antibiotics since January, and his nose was still running green and congested.  A trip to Urgent Care a couple weeks ago had found him to have a sinus infection, so I had alerted Vicki because I was concerned after so many rounds of antibiotics and the recurring stuffiness.  Dr P's flag went up too when he heard about it, which is why he ordered the CT.

Vicki called Monday afternoon to tell us that she saw a small polyp and some 'gunk' in his left sinus, and that it looked 'pretty bad.'  Dr P was out of the office for a few days, but I got a response from him today.  Vicki said he had looked at the scan and sent a note to Dr Cofer's office to see if Sax can get in for a check up sooner than what he's scheduled.  Apparently the "gunk" Vicki thought she saw is actually flesh and is most likely more polyps.  He put Saxon back on another antibiotic - this time 3x per day - that he will stay on until we get in to see ENT.  Dr P is pretty sure Sax is going to need yet another sinus surgery, and soon.  So now it's a bit of a waiting game.  If I don't hear from ENT by Friday, I'm supposed to give them a call.  So hopefully we hear from them soon!!!!