Finally. Sax is finally making progress!!!
We thought he was doing so well Friday night when we got home and he pooped 3 times! We figured he would keep going and going and going after being pumped up with 1 1/2 liters of Golytely.
But that was the beginning - and the end - of his progress.
Saturday we had the Great Strides walk, which Sax walked most of, but that didn't help move things along either. He went once Saturday night, once Sunday (which finally wasn't green!) and - wait for it!!!! - twice so far today - and not green!!! Yay!! That means the old stuff is well on its way of being cleaned out!
Tomorrow morning Saxon will be getting another scan of his tummy done so we can see how much "stuff" is still sitting in there. (Yup - they're sending me a copy of the scan, haha!)
We have a plan of attack: For about the next 10 days, we're going to be giving Sax 2 doses of Miralax - once in the morning, once in the evening. After that, we're going to a maintenance plan of Miralax 1x per day every day instead of only as needed. We're being proactive to prevent any more constipation with him.
Hopefully we won't be having many more 'crappy' conversations any time soon!
Showing posts with label Miralax. Show all posts
Showing posts with label Miralax. Show all posts
Monday, May 7, 2012
Wednesday, May 2, 2012
What a Bunch of CRAP! (a continuation of crappy conversations)
For those who may be weak of stomach, this is another one all about the poop - such is the life of a CF mom!!!
Sax had a bit of a poop last night, but nothing compared to his normal. When they told me he was packed in, I told Vicki I just had to see it! Yeah, morbid, but I'm getting pretty good at reading scans, so I wanted to give it a go. I'm sure even if you can't or haven't read scans before, you can probably tell what this is....
All those wonderful bubbles on there are gas :( Which is not coming out! He's still not drinking the Golytely with the koolaid, so now we are mixing into his PediaSure, even though that's not generally recommended. But right now, we're in a state of "whatever it takes." Vicki suggested I give him some more Miralax too, but I'm a step ahead of her on that one!!
After talking to Vicki, and her relaying the information to Dr P, we have a new game plan.
1) PediaSure mixed with Golytely - adding as much as he'll stand.
2) Pediatric Fleet Enema - administering round 1 tonight
3) Pediatric Fleet Enema - administering round 2 tomorrow morning
4) If progress is not being made at that point, contact Vicki's office for a 9am appt Friday
5) Friday morning - insertion of an ng tube and administration of Golytely through that. (note to self - bring jug of Golytely with if we go over so we don't have to buy more)
The hope is that once his colon is cleaned out via enema, hopefully he'll be able to go. If he hasn't gone a significant amount by tomorrow at 3pm, Vicki will insert the ng tube, then we will have to spend most of the day walking around at Mayo. That way, if he pulls the tube out, she can reinsert it. He won't be able to actually come home until he starts going more, and if he doesn't go after THAT, then he'll be admitted and more drastic action will need to be taken.
So I guess we're praying for a crappy night tonight!!!
Sax had a bit of a poop last night, but nothing compared to his normal. When they told me he was packed in, I told Vicki I just had to see it! Yeah, morbid, but I'm getting pretty good at reading scans, so I wanted to give it a go. I'm sure even if you can't or haven't read scans before, you can probably tell what this is....
All those wonderful bubbles on there are gas :( Which is not coming out! He's still not drinking the Golytely with the koolaid, so now we are mixing into his PediaSure, even though that's not generally recommended. But right now, we're in a state of "whatever it takes." Vicki suggested I give him some more Miralax too, but I'm a step ahead of her on that one!!
After talking to Vicki, and her relaying the information to Dr P, we have a new game plan.
1) PediaSure mixed with Golytely - adding as much as he'll stand.
2) Pediatric Fleet Enema - administering round 1 tonight
3) Pediatric Fleet Enema - administering round 2 tomorrow morning
4) If progress is not being made at that point, contact Vicki's office for a 9am appt Friday
5) Friday morning - insertion of an ng tube and administration of Golytely through that. (note to self - bring jug of Golytely with if we go over so we don't have to buy more)
The hope is that once his colon is cleaned out via enema, hopefully he'll be able to go. If he hasn't gone a significant amount by tomorrow at 3pm, Vicki will insert the ng tube, then we will have to spend most of the day walking around at Mayo. That way, if he pulls the tube out, she can reinsert it. He won't be able to actually come home until he starts going more, and if he doesn't go after THAT, then he'll be admitted and more drastic action will need to be taken.
So I guess we're praying for a crappy night tonight!!!
Monday, April 30, 2012
Rochester-bound?
We started Sax on the double dose of Miralax on Friday as suggested by Rochester. I was gone all morning on Saturday because I had class, but Daddy told me Sax had an 'accident' and pooed in his pants before he got up out of bed - probably because of the second dose. That's ok, he couldn't help it. Daddy got him to poo again on the potty chair Saturday morning.
He hasn't gone since then!
No accidents, no more on the potty chair, nothing!!
He's been wetting plenty - and not having any acccidents that way. He isn't even having as much gas anymore either. There are a few stinky ones now and then, but not nearly what he was having before, which is good.
But he hasn't pooed since Saturday morning. And it's Monday night. And he should be having one a day.
If he doesn't go tonight, we're supposed to call Vicki back in the morning. We may be Mayo-bound for a flush.
But this would actually be a good thing. They'll be able to clean it all out and prevent any serious blockage. We'll see what happens.
Keep Saxon in your prayers tonight that, if we go tomorrow, it everything "comes out" ok.
He hasn't gone since then!
No accidents, no more on the potty chair, nothing!!
He's been wetting plenty - and not having any acccidents that way. He isn't even having as much gas anymore either. There are a few stinky ones now and then, but not nearly what he was having before, which is good.
But he hasn't pooed since Saturday morning. And it's Monday night. And he should be having one a day.
If he doesn't go tonight, we're supposed to call Vicki back in the morning. We may be Mayo-bound for a flush.
But this would actually be a good thing. They'll be able to clean it all out and prevent any serious blockage. We'll see what happens.
Keep Saxon in your prayers tonight that, if we go tomorrow, it everything "comes out" ok.
Friday, April 27, 2012
The Stinky Man! (it's a crappy conversation!)
I put a call in to Vicki today. That's not a new way to open a post!
I've been a little worried, as a mother should be when something isn't quite right. And when you can't put your finger on exactly what isn't right, it makes it that much harder. Sax had been doing so much better with potty training, only having a few accidents with bm's but almost no wet diapers.
Well, this past week and a half, it feels like we've been going in reverse. He's been hiding and having numerous accidents, both bm's and wetting. I've talked to a lot of other moms and many assure me that "it's just a phase," which is what I've been hoping.
But then I started thinking....
One of the big issues with CF is the size, consistency, and smell of bm's. (ok this is gonna get a little gross) We've accused him of having accidents because quite often he has been smelling like he did. Extremely potent poopy smells - enough to make this CF mama (who is used to the smell) gag! He's been grunting and straining a lot when he passes gas. I noticed that these gas episodes started about the same time he started having accidents too. I suspected they may be related. Which is why I called Vicki.
Sax is on omeprezole (Prilosec) which should take care of any gas issues he has. He is also on a pediatric dose of Miralax 1x per day, which should help with constipation. I asked her is we should consider a consult with Dr El-Youssef, who is Sax's gastroenterologist. I wondered aloud if there may be something bound up or blocking in there. I also wondered aloud to her if maybe when he's straining to push out the gas, he's just pushing so hard that he can't help but have accidents. He doesn't seem to know whether he had an accident or if it was just gas, and has often told me he pooped when he hasn't, and vice versa. We know he is absorbing the fat and calories he's getting because his bm's aren't greasy at all. They have actually been quite hard.
Believe it or not (I didn't know this) CFer's actually can get constipated. Which is what Vicki thinks is happening. She thinks the gas we're smelling is old gas trapped behind some extra-sticky poo caught up in his bowels. That's why it smells so horrible. Even though he's still going, he's not able to get everything out. And she agrees that may be why all of a sudden he has started having accidents again. (Besides the occasional one every kid his age has because they're too busy playing and "forget"to go. Knock on wood - he hasn't had any accidents in his bed either!!! yay Sax!!)
So now the treatment plan:
(As I'm typing this, Raine is yelling at Saxon that he pooped his pants - but it's just the gas :( My poor little guy.)
And to leave you with a laugh, here's his bear wearing his (bleached) underwear.... (don't mind the pile of unfolded clean clothes in the background!!!)
I've been a little worried, as a mother should be when something isn't quite right. And when you can't put your finger on exactly what isn't right, it makes it that much harder. Sax had been doing so much better with potty training, only having a few accidents with bm's but almost no wet diapers.
Well, this past week and a half, it feels like we've been going in reverse. He's been hiding and having numerous accidents, both bm's and wetting. I've talked to a lot of other moms and many assure me that "it's just a phase," which is what I've been hoping.
But then I started thinking....
One of the big issues with CF is the size, consistency, and smell of bm's. (ok this is gonna get a little gross) We've accused him of having accidents because quite often he has been smelling like he did. Extremely potent poopy smells - enough to make this CF mama (who is used to the smell) gag! He's been grunting and straining a lot when he passes gas. I noticed that these gas episodes started about the same time he started having accidents too. I suspected they may be related. Which is why I called Vicki.
Sax is on omeprezole (Prilosec) which should take care of any gas issues he has. He is also on a pediatric dose of Miralax 1x per day, which should help with constipation. I asked her is we should consider a consult with Dr El-Youssef, who is Sax's gastroenterologist. I wondered aloud if there may be something bound up or blocking in there. I also wondered aloud to her if maybe when he's straining to push out the gas, he's just pushing so hard that he can't help but have accidents. He doesn't seem to know whether he had an accident or if it was just gas, and has often told me he pooped when he hasn't, and vice versa. We know he is absorbing the fat and calories he's getting because his bm's aren't greasy at all. They have actually been quite hard.
Believe it or not (I didn't know this) CFer's actually can get constipated. Which is what Vicki thinks is happening. She thinks the gas we're smelling is old gas trapped behind some extra-sticky poo caught up in his bowels. That's why it smells so horrible. Even though he's still going, he's not able to get everything out. And she agrees that may be why all of a sudden he has started having accidents again. (Besides the occasional one every kid his age has because they're too busy playing and "forget"to go. Knock on wood - he hasn't had any accidents in his bed either!!! yay Sax!!)
So now the treatment plan:
- Lots of water
- Lots MORE water
- Double up on Miralax dosage with pediatric dose
- Vicki will check with Dr El-Youssef to see if there is any added treatment needed
- Vicki will call me on Monday to see if it helped.
(As I'm typing this, Raine is yelling at Saxon that he pooped his pants - but it's just the gas :( My poor little guy.)
And to leave you with a laugh, here's his bear wearing his (bleached) underwear.... (don't mind the pile of unfolded clean clothes in the background!!!)
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