Wednesday, April 28, 2010
Monday, April 26, 2010
Sibling rivalry has also resumed in our house. Anything one has, the other wants and fights for. And Saxon beats on his sister. And Raine pulls and hangs on Saxon. Last night he head-butted her right in the mouth and split her lip! It bled pretty good for a while, but we got it to stop with a cold washcloth and pressure. Then tonight after supper, Raine was trying to clean up her coloring stuff - markers, paper, etc. - and Saxon decided to jump on her back and was choking her. Pull him off, tell him Not Nice and swat his diapered behinder, and set him away from her. A couple SECONDS later, he's back at it again! I had to put him in timeout again, and he just sits there and SCREAMS or bangs his head. The rain is supposed to stop tonight, so I should be able to turn him loose outside to run run run, or in his words 'go go go' and 'go side.'
Sax has 2 appointments coming up in May in Rochester. We're supposed to go see Vicki and Dr Pianosi, the pulmonologist, on May 3rd, but we got a call today to reschedule because Dr P was called away. Saxon's appointment with them has been postponed to May 21st. They'll listen to him and do chest x-rays. On the 14th we go to see ENT and have another hearing test to be sure the tubes are working like they're supposed to. And hopefully the nasal polyps are staying GONE!! We are hoping he isn't going to need surgery for that again for at least a few more years.....
We are going to be in Rochester this Saturday, May 1. This will be our 2nd year walking in the Great Strides walk. Last year Sax didn't ride the best in his stroller, but this year should be better. Raine walked the entire 10k (6.2 miles) last year!! Maybe she can make better time this year. She is bringing a friend of hers with, so that should keep her busy. We have a different group walking this year. A few of the same from last year, but some newbies too. And this year we have our own custom t-shirts for the team. Scot is already talking about next year's shirts, but I think these will be ok for at least another year. It's great, too, because not only do we all match, but when we have our fundraisers, it's easier to pick out who's working and who isn't. We have extra shirts that we are selling for $20 each - $15 to cover our cost, and a $5 donation to the CF Foundation. Our team has raised somewhere around $850 right now. That's just what I've counted in our team account and online donations. We're still short on our $3,000 goal, but we still have some time. Maybe we can sell some teddy bears at the walk??? Or some roses?? Katherine from the Foundation said a lot of people were interested in them around Valentine's Day. Our team is going to go out for lunch after the walk to plan our next fundraisers and discuss where we're at for fundraising. Olive Garden is sounding like the winner!!
Well, it's 1125, the Scrappy Man is sleeping, and so is the rest of the house, save for me. Gonna have some QUIET time to watch tv before I head to bed.... Night all!!
Friday, April 23, 2010
Our little tornado took all of his toys and threw them all over the living room right after we got done cleaning up all of the toys. Our living room is a disaster zone now!! Raine, our little antagonist, has been provoking Saxon like crazy today.
Saxon has finally started fighting back. First he hit her in the face with his toy dump truck and made her cry a bit. Then he decided it was time to whip around a bead necklace he got in NOLA. That thing HURTS when you get hit with it!!
He has been throwing his squishy ball AT people too!!
And no one is free from his anger, either!! He's been taking it out on Abby-cat even!! She got a good yanking on her tail. Poor girl! I really think Saxon is missing his friends at daycare and that may be why he's been so temperamental... He misses not having any other little kids to play with besides his sister. I'm really looking forward to being at the cabin this summer. There are plenty of little cousins for him to rough house with there...
We got a call from Vicki, our cf nurse, today. The rest of the cultures from Saxon's surgery in March came back now. Saxon is growing three different types of yeast in his lungs. One type is from being on antibiotics almost all the time. One type is just environmental. I don't remember exactly what she said the third kind is. But Saxon is going to have to go back on an oral antibiotic again, but this one is only once a day. That shouldn't be too bad. And since it's a fairly common antibiotic, it shouldn't be too expensive either. That's another plus!! Hopefully the little man doesn't get sick again any time soon!! He's scheduled to go to Rochester for his next checkup with the ENT on May 3 and his next CF checkup on May 14th... I'm really hoping it all comes back clean - that would be the BEST Mother's Day present.... here's to hoping!! Now the little man is nebbying with Daddy - hope daddy has better luck with him than I had this morning!!!
Thursday, April 22, 2010
Well, my DARLING, ADORABLE little man has found a way to SERENADE his mommy.... He played his song for mommy last night - kind of an early birthday present. His instrument of choice - a TEAPOT. Yes. A new purpose for a girl's playtoy. He 'plays' the teapot by putting the spout into his mouth, and humming/yelling through it. And "shhh" means "crescendo." I know Saxon is just practicing for his big debut. We have a musician on our hands! His sister thinks she's a singer, so maybe the kids will start their own band!!
Wednesday, April 21, 2010
The kids and I went fishing yesterday for the first time this year. Saxon's first time ever!! Got him his first fishing pole - Spiderman. They didn't have any other options for poles. I just tied the little fishy weight on the end of his line, and he had a high ho time playing with it!! He'd swing it around, push the button, let it drop down, then reel it back in! When I caught a little crappie, Saxon got excited and started squealing. I held it in front of him, and he reached out and touched it, then started squealing even louder and giggling. He LOVED it!! I'm going to have to take him fishing again!! I was surprised that he sat so well and just played with his fishing pole...
Sax has finally fallen asleep. 2 hours now to do whatever I need to do. Need to start planning our next Strides for Sax team meeting. Need to se tthe date. We only have 10 days until the walk. Hoping we get some more donations before the walk. Our next fundraiser isn't going to be until afterwards. Still brainstorming on ideas. Trying to find something that won't cost us anything or little to sponsor so that we don't take another loss. I'm really liking the auction idea... just gotta see what the team thinks.... Thinking a Poker Run would be low cost for us, too, so just gotta see what we can do!! I'm open to any other suggestions anyone has!!
Monday, April 19, 2010
Put him in his pack and play. Little turkey knows how to manipulate us though!! His poor little forehead is covered with bruises. To try to get OUT of the playpen, he headbutts the bars on the side, making himself cry and saying Ow!! At first I fell for it and took him out when he started doing it. Now he does it EVERY time he doesn't want to be in there. He's smart!! Can't believe how quick he picked up on that!!
The summer I was pregnant with Saxon, 2 years ago, our AC stopped working. Not sure what was wrong. The compressor would heat up and the fan would blow, but no cold air would come in. I was big a miserable, having a July baby!! Spent my time under the ceiling fan with oscillating fans going. Last summer wasn't too hot, so we got lucky with that. Called the AC guys today, though, cuz looks like it's going to be a HOT summer!! Surprising, I called them after 3, and they still made it here this afternoon and got it fixed... but the major shocker was the cost!! If I would have known it was only $112, I would have done it before! Live and learn!! Our nurse had suggested, though, that it may be possible to put it as a 'medical expense' since it is a necessity for Saxon to have. I'll have to check into it....
Sunday, April 18, 2010
Strides for Sax held our second fundraiser of the year..... It was looking to be a big one for us to follow up the sloppy joe dinner in March. We were serving pulled pork sandwiches or hot dogs, chips, baked beans, and beverages. We had a bake sale to go along with it. I spent 3 days myself just making candies, fudge, cupcakes, cakes, oyster crackers, and other goodies for the fundraiser. Several others made goodies for it too. It was held at the Union Center here in Albert Lea 11-3. We had ads in the Tribune and Shopper, KAAL TV, Visitor's Bureau, Tribune Weekend Planner, and posters almost everywhere, plus the word-of-mouth advertising for over a month. Everything looked like it was falling into place. We even got the rental fee waived for the Union Center. Talk about Great!!!
Then it was Saturday....... I was up early, had the car packed.... ready to go get the buns for the lunch. Got to Hy-Vee, gave them my name - No one knew anything about them!!!! First bad sign. 1 customer service rep, 1 bakery call, 2 intercom pages, and 3 managers later, and the buns were tracked down. Yes, I ordered them in advance. About a month ago. I talked to Steve. Oh? Steve didn't say anything or leave a note?? Here's my receipt, I paid for them yesterday. He said they would be here after 6 am. Tom rang me up. Is he here? Half hour later and I was on my way to the Union Center. Damn, I'm running late.... I had the key, supposed to be the first one there.... Oh, no one else is here yet!! Need to get the food started!!! Grabbing the roasters, put pork in one, hot dogs in one, beans in one...
Mandi was the next person there.... she had brought some of the buns that wouldn't fit in the car. She, Raine, and I hauled the stuff in. Mostly them as I was trying to get food going and coffee made, etc. This meat doesn't seem to be getting very warm. The roaster was warmer earlier. The beans are ice cold!! The hotdogs aren't warming up either!! What the?!?!?! More of the team started arriving. I told them what I had been doing and everyone jumped in and started getting ready, finishing setting up the bake sale... But why wasn't the food warming?? And the CD player isn't working???? Tripped a circuit. Try another outlet. Another circuit!! On and on!! I can't even count how many times we tripped the circuits!! My small roaster was doing fine heating up the pork - until I plugged in the coffee maker!! Tripped another!! Pretty soon it's 10:45, my sister is on her way to pick up food for her coworkers, and nothing is done!! We got the hot dogs and meat going finally. Beans are cold - throw them in the nuker!!! CRAZY!! The beans were STILL cold when our first customers showed up.... fortunately it was someone I knew, we nuked more beans - crisis averted!! Supposedly....
We didn't expect a huge rush right at 11. After all, the Family Fun Fair was going on at the mall. And the Fountain Lake 5 run. We figured people would start showing up after the run and on their way to/from the fun fair. Oh, here's another couple coming in!! Oh, we know them too.. My Great grandma and cousin. A little later - oh, here's someone else!! It will get busy. We still have some more time!!
A flop. A disaster. How else to describe it.... unknown. Our total turnout: 10 customers (not counting the 10 takeouts). After all of the advertising we did and all the work that went into it, and running to Northfield to get the t-shirts the night before, it was a hard blow to us all.... Now to recover from this.. disaster. The team is rallying together and brainstorming.
Only 2 weeks until the walk. Next fundraiser won't be until after then. But then after that, we have a few more ideas we may try out.... If the team hasn't lost heart. But our team is great. Don't think a little bump will deter them much!!
Thanks to the team for all their work in spite of the lack of turnout!! Erin, Brian, Steph, Brandon, Scot, Saxon, Raine, Damion, Zack, Sam, Mandi. You all did fabulous!!