Thursday, after all of our running, Saxy and Mommy made a trip the the clinic. His nose went from running a little and his head was congested, to blowing out large amounts of green mucus and wheezing. Any other day, I would just call the doctor to get a script for the antibiotics, but the wheezing had me more concerned. After talking to 3 different people on the phone, we had an appointment scheduled with one of Dr Ulrich's PA's for 10:45 am. Much shorter wait time than going through Same Day clinic or Urgent Care, and we get a CHOICE over who we see, which is great.
This PA Michael seemed pretty good like the last PA we had (Andrew). He listened to all of Sax's symptoms, what treatments we've been doing, and what my thoughts and suggestions were on his illness. Sax was really good about the exam - he even climbed up on the table by himself! Michael looked in his ears, mouth, and nose and listened to his lungs. He said Sax's lungs sounded ok and he thought any sounds he may have heard were made by the postnasal drainage.
We requested that Saxon not be put on Omnifec this time. The Omnicef DOES work, but it also causes him not to eat and causes a lot of bm issues... and we've have success in the past with Augmentin, so that's what we decided to go with - 2x per day for 10 days, along with 3-4 vest treatments per day with Albuterol for the first 2-3 and Pulmozyme with the last. At first it looked like this all was going to work... not so much now. Many other CF moms suggest we give him probiotics to combat the bm issues - well that's all fine and dandy - IF he would EAT! It doesn't matter what foods we try giving him if he's not going to eat them!!Last night was a really bad night for Sax... He kept Mommy up until 2am... If he decides to nap today, I think I will have to nap too...
Now, in fundraising, we are having a StridesForSax team meeting tomorrow night to plan for our upcoming fundraiser on March 5. We are serving food for the annual Aragon Dart Tournament. The agenda is to discuss and set pricing for the meal, make posters, and discuss any further fundraisers we may want to do. It's also time to get registered for the Great Strides walk. Just go to our site to register to join our team today!! Or, if you would rather just make a donation, you can do that here too!! We're hoping for a good turnout!!
This is Saxon, our energetic little man who was diagnosed with Cystic Fibrosis when he was a week old. We gathered together many friends and family members and created Strides for Sax. Our mission is to raise money and create awareness for the Cystic Fibrosis Foundation to find a cure for cf. This is all about Sax and our team's efforts for the cause. As of the creation of this blog, Saxon is 21 months old, has been hospitalized several times for pneumonia, and had undergone 3 surgeries since his first birthday.