This is Saxon, our energetic little man who was diagnosed with Cystic Fibrosis when he was a week old. We gathered together many friends and family members and created Strides for Sax. Our mission is to raise money and create awareness for the Cystic Fibrosis Foundation to find a cure for cf. This is all about Sax and our team's efforts for the cause. As of the creation of this blog, Saxon is 21 months old, has been hospitalized several times for pneumonia, and had undergone 3 surgeries since his first birthday.



Monday, May 7, 2012

Progress!!! And a new plan...

Finally.  Sax is finally making progress!!! 

We thought he was doing so well Friday night when we got home and he pooped 3 times! We figured he would keep going and going and going after being pumped up with 1 1/2 liters of Golytely.

But that was the beginning - and the end - of his progress.

Saturday we had the Great Strides walk, which Sax walked most of, but that didn't help move things along either.  He went once Saturday night, once Sunday (which finally wasn't green!) and - wait for it!!!! - twice so far today - and not green!!! Yay!!  That means the old stuff is well on its way of being cleaned out!

Tomorrow morning Saxon will be getting another scan of his tummy done so we can see how much "stuff" is still sitting in there.  (Yup - they're sending me a copy of the scan, haha!)

We have a plan of attack:  For about the next 10 days, we're going to be giving Sax 2 doses of Miralax - once in the morning, once in the evening.  After that, we're going to a maintenance plan of Miralax 1x per day every day instead of only as needed.  We're being proactive to prevent any more constipation with him.

Hopefully we won't be having many more 'crappy' conversations any time soon!

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