This is Saxon, our energetic little man who was diagnosed with Cystic Fibrosis when he was a week old. We gathered together many friends and family members and created Strides for Sax. Our mission is to raise money and create awareness for the Cystic Fibrosis Foundation to find a cure for cf. This is all about Sax and our team's efforts for the cause. As of the creation of this blog, Saxon is 21 months old, has been hospitalized several times for pneumonia, and had undergone 3 surgeries since his first birthday.

Monday, May 17, 2010


That was how Dr. Cofer, our ENT, described Saxon at his appointment on Friday - AWESOME! No nasal polyps. Tubes are perfectly in place. Breathing sounds great. Hearing test came back with SIGNIFICANT improvements - he can almost hear normal!! Now we just have to deal with the 'normal' male selective hearing. Too bad there aren't any medical remedies for that, I think we'd all be signing up!! I was really surprised at how well Saxon sat for his appointments. He didn't fight too much when it was time to leave the play area. He lead the way to the hearing room. We were all having a little trouble hearing the sounds when Raine decided she couldn't sit still any longer. Otherwise it went pretty well in there. After the hearing test when we went into Dr Cofer's office, Saxon turned his head and let her look in his ears and his nose. The mouth was the hard part. Every time she put the stick in his mouth, he clenched his teeth down on the stick. After about 6 or 8 times, he finally opened his mouth enough to let her see down his throat. Now we have to go back to see her every 6 months for followups. Hopefully we won't be dealing with any more polyps for quite a while!! After 2 years of appointments, we were VERY happy to FINALLY have some good news... and not another setback.
We had a Strides for Sax team meeting tonight. We discussed the float for the 3rd of July parade. Our theme is going to be Unsung Heroes. We are still brainstorming for how exactly to set up the float. We will be needing to set up at least one or two more meetings before the parade to finalize how to decorate the float. We also decided we are going to do the Poker Run. We are considering pre-selling tickets, we have a list of where we would like to use for our stops, and places to ask for donations for prizes. There's a lot of leg-work to do. If this is successful, there is a possibility of it becoming an annual event. We are going to need to find some more people to help with the run..... but we still have the basics to cover first. We're always looking for more people to join up with us!!

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