This is Saxon, our energetic little man who was diagnosed with Cystic Fibrosis when he was a week old. We gathered together many friends and family members and created Strides for Sax. Our mission is to raise money and create awareness for the Cystic Fibrosis Foundation to find a cure for cf. This is all about Sax and our team's efforts for the cause. As of the creation of this blog, Saxon is 21 months old, has been hospitalized several times for pneumonia, and had undergone 3 surgeries since his first birthday.

Tuesday, May 4, 2010

~Crazy Days~

It's been crazy busy so I haven't had time to update Saxon's page!! Let's backtrack. The new playset Scot ordered came for the kids on Friday. Saxon has absolutely NO FEAR, which kinda scares me!!! Scot started on the playset on Saturday after we got home from Great Strides, and by the end of the day on Sunday, we had it pretty much done, except for a brace by the tire swing. On assembly, that is. We still have a LOT of sand to put down. We've put over 700 pounds of play sand so far, and have a lot more to do!! Under the tire swing we're going to make a sandbox since the turtle is getting too small for both kids to play in. I dug out the end of the slide yesterday after Saxon went down the slide in his jogging shorts - and FLEW!! He landed kinda hard, so I decided we needed some sand padding - I put down about 150 lbs for cushioning. That seems to work pretty good. Eventually the entire swing set will have sand under it, but one step at time!!

Saxon has been LOVING this weather!! He has slept so well the last few days since he has been getting so much fresh air and he has been playing so hard! We also have Raine to thank for that. She has been getting him to play ball, swing, go down the slide, climbing the ladder, chasing more bubbles, tormenting Abbycat, and just overall having a lot of fun. Abbycat has had to find a place to hide from the kids to stay safe!! We have a pile of branches from the weeping willow that we've been gathering to haul out to the waste station. Abby has decided that's a safe place to hide because even she has difficulty finding her way out of it!!!!

Saturday we had our annual Great Strides walk in Rochester around Silver Lake, to Soldier's Field Park and back. Sax rode in the stroller most of the time. For the second year in a row, Raine walked the whole 10k (pretty much!!)
We had a few returning walkers this year. Me, Scot, Raine, Kristy, Abbey, and Steph.

We also had some new walkers this year!! Brian, Brandon, Erin, Lori, and Emma. And this year, the whole team walked together, whereas last year about half the team walked together and everyone else went off on their own. By the time we got to the end of the walk, Saxon and Emma were both exhausted and sleeping!! I felt bad waking him up when I loaded him into his car seat. He didn't get back to sleep until we were on our way home after lunch. We ate at Olive Garden, which was fab!! Except for the part where Saxon was freaking out. There was a birthday party near us, and he was OBSESSED with the balloons!! Finally Lori took him over and got one for him. That mellowed him out, although he still didn't eat much. He like the whipped cream I gave him that was on top of my beverage since I had to use that to give him his enzymes in that. He wasn't too interested in his broccoli, chicken, and noodles. Sax was hungry when we got home, though, once he finally woke up!!!
*****Note - Our team wore red on our walk with our t-shirts in honor of Connor, another little boy who is battling CF and also Prune Belly Syndrome. We send our thoughts and prayers to Connor and his family.*****

As of the walk, our team has raised around $1,000. That puts us 1/3 of the way to our goal. We have until December 31 to meet our goal. I'm anxious to hear what the total for the Rochester walk came to!! There didn't seem to be as many people there this year as last year. It didn't seem like a lot of the people who were there for the assembly walked, either. We are definitely working hard to try to recruit new members to walk and to increase awareness of CF. My Opa has donated the use of a trailer and the entry fee for us to enter a float in the Albert Lea 3rd of July parade. The theme for the parade is "Hometown Heroes" so we need to come up with an idea that incorporates that or a theme involving red, white, and blue. We will be having another meeting before long to plan this. The team has been brainstorming on some different fundraisers too. We're always looking for new ideas!!!

Saxon and Mommy both got spoiled yesterday too!! We had to take Mommy's car to the shop cuz my tail light was out. We took Grandma Betty's car to take Grandma to Mankato. She's staying with Aunt Susan for about a week. Aunt Susan said if I brought Grandma up she would buy us lunch. We went to Red Lobster (her idea!!) and I got a big surprise.... Saxon LOVES crab legs!! He had his chicken fingers and fries, but kept pointing at my food saying 'nummy, nummy' so I gave him a taste (no butter!), and he DEVOURED it!! Sax kept pointing and asking for 'mo! mo!' so I shared with him. I was surprised cuz I'm the only one in our house that eats seafood or fish, other than tuna. I guess some of Mommy did rub off on Sax!! The rest of the crab that I fed to him I made sure to douse completely in melted butter - Hey, the calories are good for him!!

Saxon gave me another - nice - surprise today. He has decided that for now, he likes his nebby again. For a while he was fighting it and throwing it and doing everything he could to get out of being nebbied. But for the last couple days, he has been good and even fallen asleep during his nebby and not fought his thumping.

Well, it's raining out, and my children are sleeping. It's time for Mommy to follow suit. I can't wait to see what tomorrow brings with my bundles of joy!!

1 comment:

  1. Hi Mindy-
    I am also a CF mommy. My family is from Albert Lea. I lived there for about 10 years as well. I heard about Saxton through my Grandma who told me about the fundraiser there. It caught my attention as there is not a lot of CFers out there. Just wanted to say HI.