This is Saxon, our energetic little man who was diagnosed with Cystic Fibrosis when he was a week old. We gathered together many friends and family members and created Strides for Sax. Our mission is to raise money and create awareness for the Cystic Fibrosis Foundation to find a cure for cf. This is all about Sax and our team's efforts for the cause. As of the creation of this blog, Saxon is 21 months old, has been hospitalized several times for pneumonia, and had undergone 3 surgeries since his first birthday.

Sunday, May 5, 2013

Great Strides 2013 - and Tune-Up Info

Yesterday was our Great Strides walk.  I am happy to report that our team raised over $700!!  We didn't have as big of a team as last year, in part because of the weather, but we still had 11 walkers:

Me, Scot, Raine, and Saxon
Steph Terry and her girls Marissa and Ana
Sam Wasmund
Steph Putzier and her son Gavin
Jason Becker

It was Jason's first year walking - it's always nice to add a new person to the group.  We survived the snow along the way, even though it was a little difficult to get through in a few spots with the strollers.  There weren't very many walkers overall.  We usually have to park several blocks away, but this year we parked in the lot right by the park.  We were outside with the kids during the program, so we must have missed the announcement of not going to the 2nd checkpoint.  We got that far and didn't see anyone else there with refreshments, which they normally have.  We also didn't see anyone coming up behind us.  But we got twice the walk in.  One guy from another team decided to go all the way to Soldiers Field, but that would have been too difficult through the snow with the strollers. (I also noticed the date is wrong on my camera!)

Scot, Saxon, and Sax's CF nurse Vicki

Supposed 2 be checkpoint #2

As for Sax's upcoming appointment, our plan is that Sax is getting admitted on Thursday after his surgery.  His tune-up will consist of IV antibiotic cocktail and CPT 4x daily.  He is expected to be in the hospital until May 19th.  It could be a few days more or a few days less, depending on what his cultures grow.  I will try updating here daily while we are in....

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