This is Saxon, our energetic little man who was diagnosed with Cystic Fibrosis when he was a week old. We gathered together many friends and family members and created Strides for Sax. Our mission is to raise money and create awareness for the Cystic Fibrosis Foundation to find a cure for cf. This is all about Sax and our team's efforts for the cause. As of the creation of this blog, Saxon is 21 months old, has been hospitalized several times for pneumonia, and had undergone 3 surgeries since his first birthday.

Thursday, May 2, 2013

Time for a Tune-Up

We got the call we've been waiting for from the doctor's office.  The plans are all set.  Next Wednesday, May 8th, I'll be taking him in for an appointment with Dr Cofer, his ENT.  This will be for his pre-op consult.  I will have to call in on Wednesday night to find out his report time for Thursday.  He will have surgery on Thursday.  They will be doing a bronchoscopy along with removing the polyp.  Marcia, the other CF nurse, said that the "gunk" in Saxon's nose is actually tissue - and the start of more polyps. Dr Cofer is going to clean all of that out.  Then he will be admitted to the hospital for a 'tune-up'.  I'm not sure what all that entails, but from asking a few friends with CF, it sounds like he will be doing extra treatments and IV antibiotics.  Dr Cofer and Dr P want to be thorough.  After they clean him out, they want to be sure we kill off all the bad stuff.  Hopefully we'll be able to avoid antibiotics for a while then!!!!

In the mean time, we've been (trying to) enjoy the weather.  The weekend was gorgeous - spring really was here with temps in the 70s, sunshine, and the grass started turning green!  It was sooooo nice.  We went for a few walks - one day around the lake, another day on the trail near our house.  Sax enjoyed the trail more than the lake.  You can see why....

 He had never held a turtle before - and we saw 3 of them along the way!  Mommy caught a little one to show him, then he caught these two.  He was pretty excited!!!  He really wanted to keep one and bring it home, but I convinced him that it was better to leave it there and we could come visit it on another walk.

We also spent quite a bit of time playing outside.  The kids have taken some boards and old pallets and have been practicing hammering in nails.  Sax was a little mad, if you can't tell, because he was pounding a nail into some wood "and I heard a plop.  A bird pooped on my pants!!"

 But check out that gorgeous sunset!!!

If only the great weather would have lasted.....

Because this morning, this is what we woke up to...

3 of the 4 sides of our fence were damaged by fallen branches.  Scot didn't go in to work right away because the shop didn't have any power.  The city police were contacting the television stations and telling everyone to stay off the roads because of downed power lines and trees.  The kids enjoyed a snow day... on May 2!!!!  Various parts of town ended up with 11-14" by the time it was done.  It was heavy, wet snow, perfect for making a snowman.... or a snow fort.

The shoveling wasn't too easy though!! "This is hard work" as he is shoveling the neighbor's driveway.

Raine is really hoping there is school tomorrow.  We're supposed to get a little more snow tonight and tomorrow, then it's supposed to switch over to rain.  Our Great Strides walk is still on for Saturday - we're just a little bit worried about actually getting there if the roads are too bad.  I hope so, cuz I dyed my hair, Saxon's hair, and Scot's goatee purple (well, mine and Scot's are actually dark burgundy.)  Tomorrow I'm planning to do Raine's.  

But maybe with this weather, we'll just need purple stocking caps??

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