This is Saxon, our energetic little man who was diagnosed with Cystic Fibrosis when he was a week old. We gathered together many friends and family members and created Strides for Sax. Our mission is to raise money and create awareness for the Cystic Fibrosis Foundation to find a cure for cf. This is all about Sax and our team's efforts for the cause. As of the creation of this blog, Saxon is 21 months old, has been hospitalized several times for pneumonia, and had undergone 3 surgeries since his first birthday.

Wednesday, September 18, 2013

You're a CF Mom (Part 3!)

Continuing with our CF Mom series :)  The good, the bad, and the ugly truth.... and a little more serious than some in the past....

You know you're a CF mom if.....

You know there is a smell worse than your CFer's poops - and you KNOW what that smell is - his old gas!!

You know just how valuable each and every day is when your family is healthy.

You have to plan our your child's medication schedule carefully so he doesn't take medications that interact with each other together

You look forward to 'thumpies' because it's an excuse to snuggle with your CF toddler who otherwise never sits still.

When your CFer is potty training, he has 'accidents' for medical reasons, not just because of a 'stage' he's going through.

You get used to the odd looks from strangers as your CFer is asking for "salt on my hand," you oblige, and he eats it straight.

You have told your doctors to do whatever is necessary and actually mean it.

Your child's personal library is built with booked labeled "Yours To Keep" that they received from the clinic waiting room.

The lady that runs the chocolate store at the clinic knows you, your family, and what you are going to buy the moment she sees you walking down the hall.

You and your husband joke about buying a vacation home within walking distance of your CF clinic/hospital because you're there so much.

You know there are worse things than your child having CF and you are thankful that CF is all you have to adapt to.

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