This is Saxon, our energetic little man who was diagnosed with Cystic Fibrosis when he was a week old. We gathered together many friends and family members and created Strides for Sax. Our mission is to raise money and create awareness for the Cystic Fibrosis Foundation to find a cure for cf. This is all about Sax and our team's efforts for the cause. As of the creation of this blog, Saxon is 21 months old, has been hospitalized several times for pneumonia, and had undergone 3 surgeries since his first birthday.

Monday, April 19, 2010

Headbutts and AC

Sax was quite the handful today!! From not wanting to get dressed when we took Sissy to school, to throwing cookies across the living room!! He was occupied, happily, playing with his big blue truck - if he could slam it into the tv. Ok, it's partly our fault. The truck only makes noise when the front end crashes into something. But the tv? Really. No Saxon, SpongeBob does not want to go for a ride in your truck. He's not coming out of the tv to play! He didn't take much of a nap this morning. He snuggled on Mommy's lap and watched SpongeBob for a while and slept ON me (not that I minded - I caught a few winks too!!) until the phone rang. Just the pharmacy calling to make sure his TOBI was going alright. Time for lunch after that anyway. Beans - yummy, pulled pork - didn't touch it. Cookie! Cookie pwease!! Cookie goes flying off the tray 2 seconds after I set it down. TIMEOUT!!

Put him in his pack and play. Little turkey knows how to manipulate us though!! His poor little forehead is covered with bruises. To try to get OUT of the playpen, he headbutts the bars on the side, making himself cry and saying Ow!! At first I fell for it and took him out when he started doing it. Now he does it EVERY time he doesn't want to be in there. He's smart!! Can't believe how quick he picked up on that!!

The summer I was pregnant with Saxon, 2 years ago, our AC stopped working. Not sure what was wrong. The compressor would heat up and the fan would blow, but no cold air would come in. I was big a miserable, having a July baby!! Spent my time under the ceiling fan with oscillating fans going. Last summer wasn't too hot, so we got lucky with that. Called the AC guys today, though, cuz looks like it's going to be a HOT summer!! Surprising, I called them after 3, and they still made it here this afternoon and got it fixed... but the major shocker was the cost!! If I would have known it was only $112, I would have done it before! Live and learn!! Our nurse had suggested, though, that it may be possible to put it as a 'medical expense' since it is a necessity for Saxon to have. I'll have to check into it....

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