This is Saxon, our energetic little man who was diagnosed with Cystic Fibrosis when he was a week old. We gathered together many friends and family members and created Strides for Sax. Our mission is to raise money and create awareness for the Cystic Fibrosis Foundation to find a cure for cf. This is all about Sax and our team's efforts for the cause. As of the creation of this blog, Saxon is 21 months old, has been hospitalized several times for pneumonia, and had undergone 3 surgeries since his first birthday.

Friday, April 23, 2010

Rainy Days...

Today has taken a toll on Saxon by him being inside all day. His temper tantrums aren't getting much better. Daddy got a taste of them this evening. Our Monkey Man has been climbing all over and trying to climb out of his crib and his playpen. The newest climber for him is the toybox. We had to put the toybox in front of the entertainment center so Saxon wouldn't open the cupboards and pull all the movies out, and to keep him from pushing the buttons on the tv. That worked for a while. But not any more. Now he climbs up on the toy box and tries pulling everything off of the entertainment center. There isn't anything safe anymore!!!

Our little tornado took all of his toys and threw them all over the living room right after we got done cleaning up all of the toys. Our living room is a disaster zone now!! Raine, our little antagonist, has been provoking Saxon like crazy today.

Saxon has finally started fighting back. First he hit her in the face with his toy dump truck and made her cry a bit. Then he decided it was time to whip around a bead necklace he got in NOLA. That thing HURTS when you get hit with it!!

He has been throwing his squishy ball AT people too!!

And no one is free from his anger, either!! He's been taking it out on Abby-cat even!! She got a good yanking on her tail. Poor girl! I really think Saxon is missing his friends at daycare and that may be why he's been so temperamental... He misses not having any other little kids to play with besides his sister. I'm really looking forward to being at the cabin this summer. There are plenty of little cousins for him to rough house with there...

We got a call from Vicki, our cf nurse, today. The rest of the cultures from Saxon's surgery in March came back now. Saxon is growing three different types of yeast in his lungs. One type is from being on antibiotics almost all the time. One type is just environmental. I don't remember exactly what she said the third kind is. But Saxon is going to have to go back on an oral antibiotic again, but this one is only once a day. That shouldn't be too bad. And since it's a fairly common antibiotic, it shouldn't be too expensive either. That's another plus!! Hopefully the little man doesn't get sick again any time soon!! He's scheduled to go to Rochester for his next checkup with the ENT on May 3 and his next CF checkup on May 14th... I'm really hoping it all comes back clean - that would be the BEST Mother's Day present.... here's to hoping!! Now the little man is nebbying with Daddy - hope daddy has better luck with him than I had this morning!!!

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