This is Saxon, our energetic little man who was diagnosed with Cystic Fibrosis when he was a week old. We gathered together many friends and family members and created Strides for Sax. Our mission is to raise money and create awareness for the Cystic Fibrosis Foundation to find a cure for cf. This is all about Sax and our team's efforts for the cause. As of the creation of this blog, Saxon is 21 months old, has been hospitalized several times for pneumonia, and had undergone 3 surgeries since his first birthday.

Monday, September 20, 2010

The first of the year.....

It was good while it lasted. 

About a week and a half ago, Raine started coughing.  Then her nose started running.  So Thursday, we took her into Urgent Care because her cough was getting worse, it was keeping her up at night, and her nose started running.  Just a bad cold.  Just postnasal drainage. (one of my LEAST favorite diagnosis!!)  At least they gave her some cough syrup with codeine to help her sleep, and Flonase to help with the congestion.

Tuesday night, Saxon's nose had started running a little bit, but it was clear.  Maybe it's just allergies?  He's on Claritin already.....  Wednesday night it was turning a little yellow.  By the time we got home from Urgent Care with Sissy, it was yellow-green - the beginnings of an infection.  Great.  At least there's no additional coughing!! 

Until Friday.  Mommy woke up with a sore throat and a mild headache - almost a migraine, but not quite as severe.  Not at first.  Saxon started sounding junky.  Mommy decided we're really not going to be going anywhere too much, except Mommy had to work at a show.  Sax snuggled with Mommy quite a bit, then when Raine got home, started getting pretty wild.  She would go into a coughing fit from rough housing, then he would start coughing and his nose would run.  (I'm glad we bought the 3 pack of Kleenex for school so we had the 2 extra boxes at home!!)  Mommy's headache was getting worse and worse.  Mommy wanted to take a nap, but that wasn't going to happen.  Raine went with Mommy to work, and Daddy tried to get the Scrappyman to rest a bit to see if he would feel any better.

Saturday morning. 

Raine is barking.... no, she's coughing.  Sounds like barking.  Her nose is red.... raw.  It hurts from blowing it so much. 

Mommy has a headache - would have to say it's a sinus headache, still bordering on a migraine.  Feeling nauseated.  Can't lay down cuz then I can't breathe.  Supposed to be going to a welcome home party for my cousin... had to send our regards.  My sinuses and throat and body aches almost had me convinced it was the flu.  But no fever.

Sax is congested.  His nose is running pretty steady now.  He's coughing more than normal.  His breathing is raspy.  He tries to cough, but can't get anything up, or just isn't spitting it out.  We added in another thumpy (vest treatment) with another albuterol. 

Daddy had to go get more albuterol since we were out.  Getting some meds for Mommy and for himself too.  We still have an antibiotic on file, so we get that filled for Sax too.  Pharmacy calls - no albuterol refills left!! Oh no!!  Well, I have doc's cell number - I text him, and minutes later he texts back No Problem!  By the time Daddy got to the pharmacy, all the meds are ready to go!  The vest was knocking stuff loose.  Just really wish he would spit it out.....

Mommy broke down and went to get some mentholated cough drops then took some Sudafed PE.  Helped to clear the sinuses a little.  Eased the headache a tiny bit....

Saturday night Saxon woke up in the middle of the night.  No, didn't wake up.  Just started crying.  Crying in his sleep.  Wouldn't wake up.  He was between Mommy and Daddy.  Tried calming him.  Tried waking him.  Eventually he fell back asleep snuggled up against Mommy.

Daddy always gets up too early.  Mommy is more of a night owl than an early bird.  Daddy was up with the kids and had them eating before Mommy was up.  Mommy slept a while longer, trying to get rid of the awful sinus headache. It finally accepted defeat around supper time!!  What a LONG 3 days!!

Sunday was just a lazy day all around.  Supposed to go to a family reunion, didn't want to let g-g-grandma down, but didn't want to get everyone sick or get the kids sicker or Mommy sicker.  We just stayed home.  Sax spent the day riding his motorcycle from the living room to the kitchen and back, or snuggling and napping with Mommy, or snuggling with Daddy. 

Raine hid in her room playing with her Barbies, happy her brother stayed downstairs.  By this evening, everyone seemed to be feeling at least a little bit better.  Hoping everyone is feeling better this week and no more trips to the doctor for a while!!  Sax has 14 days on his, so we'll see what happens!

No comments:

Post a Comment