This is Saxon, our energetic little man who was diagnosed with Cystic Fibrosis when he was a week old. We gathered together many friends and family members and created Strides for Sax. Our mission is to raise money and create awareness for the Cystic Fibrosis Foundation to find a cure for cf. This is all about Sax and our team's efforts for the cause. As of the creation of this blog, Saxon is 21 months old, has been hospitalized several times for pneumonia, and had undergone 3 surgeries since his first birthday.

Monday, September 13, 2010

Busybody Boy

Saxon has been keeping Mommy and Daddy pretty busy lately.  He's been constantly GO! GO! GO!! But that's OK!! It helps exercise his lungs.  It keeps him healthy.  He's got quite a bit of his dad's spitfire in him too!!!  Nap time is becoming more difficult as he thinks he will miss out on something if he naps.  Yesterday was almost awful in the late afternoon because he REFUSED to slow down.  He could barely stand up!! But that wouldn't slow him down!!

I'm just amazed at how fast Saxon is catching on to things.  His new favorite kids shows are Umizoomi and Mickey Mouse Clubhouse.  He also LOVES watching Monster Jams (monster trucks) when they're on.  Last Thursday when Scot got home, Saxon went and climbed up on his lap with a book.  It was a Dora book about flying kites.  Well, that little stinker was pointing to the pictures telling Daddy exactly what everything was.  He's also starting to count!!  We've been working on just counting to five right now when he's in his vest doing treatments.  When Umizoomi is on and they ask the audience questions - Saxon ANSWERS them!!  When it's time to say Super Shapes or Pattern Power, he says it right with them!!  When they ask if the shapes fit or if something is right, he will nod yes or shake his head no - and he's RIGHT.... he's a smart little whip!!

Here's a few pictures of him watching Umizoomi and doing the "Umi Shake"

It's so funny watching him do that!!  Especially when it's time to "crazy shake" - he usually makes himself dizzy and about falls over!!

He also still has a thing for clothes baskets and Rubbermaid totes.  He will dump the clothes or toys out of them so HE can play in them!

Such a silly little man!!

We have temporarily upped Saxon's vest and nebulizer treatments.  He's been playing outside quite a bit, and he's been sounding kind of snotty and coughing a little.  We pat him on the back to try to get him to cough stuff out, but he can't quite figure out how to get it out.  We think it's allergy-related since he's not showing any other signs of being ill and he's not acting any different.  We're going to keep an eye on it.  If it doesn't clear up by the end of the week, I think I'm going to call Vicki or Dr Ulrich and see about putting him on antibiotics.

Saxon had to go to the doctor today for a one month weigh.  He weighed in at 12.5 kg at his last appointment.  This time he was at 12.9 kg.  I have a call in to Vicki to see if that means we are going in to Mayo in October or if we get to wait until November.  I'm also really hoping Saxon decides he's going to start eating more!!  He's drinking his 3 PediaSures per day, but he's still not eating too much... It's frustrating.  All we can do is keep trying!

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