This is Saxon, our energetic little man who was diagnosed with Cystic Fibrosis when he was a week old. We gathered together many friends and family members and created Strides for Sax. Our mission is to raise money and create awareness for the Cystic Fibrosis Foundation to find a cure for cf. This is all about Sax and our team's efforts for the cause. As of the creation of this blog, Saxon is 21 months old, has been hospitalized several times for pneumonia, and had undergone 3 surgeries since his first birthday.

Friday, December 24, 2010

Christmas Eve....

The kids are tucked away in bed, waiting for Santa to come as they sleep, excited to see all the toys and goodies they've been brought....  They deserve it... They're good kids..... 

Saxon is not back to 100%.... We had an appointment yesterday at the ALMC clinic.  Vicki told us that if his appetite wasn't back and if he was still having bad gas and irregular bowel movements, we would need to take him in.  I tried to get in to see Dr Ulrich, but he wasn't available, so we were referred to see the PA. 

The abdominal x-ray showed his abdomen was distended from gas.  Nothing else seemed to be abnormal, and his temperature was normal.  Andy, the PA, requested a stool sample, which had to be refrigerated and be brought back.  We were SURE to bring it back right away this morning!!  I didn't want that stinky poop in my fridge!!!!  I feel bad for whoever has to deal with that in the lab -- I wouldn't wanna be the one who opens that container!!  I have built up a tolerance for the CF smell, but even I was gagging when taking that sample!!!  So that's some potent poo!! lol!!  In the meantime, Vicki wants Sax on Miralax through the new year....

Tonight Sax did eat some ice cream.  I guess that's better than nothing.  And a few cookies.    Since he's not eating much, I'd rather him eat that than nothing....  I'm hoping we get some answers when the test results come back...... and that he doesn't lose any weight in the meantime...  But until then, we're going to try to have a good Christmas. 

(He was excited to open his Christmas Eve gift though!! A train from Raine, after they sprinkled reindeer food out in the yard)

Spreading reindeer food for Rudolph

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