This is Saxon, our energetic little man who was diagnosed with Cystic Fibrosis when he was a week old. We gathered together many friends and family members and created Strides for Sax. Our mission is to raise money and create awareness for the Cystic Fibrosis Foundation to find a cure for cf. This is all about Sax and our team's efforts for the cause. As of the creation of this blog, Saxon is 21 months old, has been hospitalized several times for pneumonia, and had undergone 3 surgeries since his first birthday.

Tuesday, December 28, 2010


So I talked to Marilyn (our nurse at ALMC) today.  The culture results are in.  The results are negative - nothing was found in his bm's.  So that closes that one out.  I also talked to Vicki yesterday.  (We had to order more enzymes but we had to have her fax in the prescription because of his increased dosage.)  I told her about the appointment on Thursday and how I was waiting on the test results and that the x-rays only showed that his abdomen is distended because of gas, which we already knew, but there is no blockage.  Based on what Vicki told me, with the stool cultures coming back negative, we can pretty much chalk it up to the Omnicef (antibiotics) that he's on right now, because they can cause stomach flu-like symptoms.  He's on those until Thursday since all antibiotics for our little CFer have to be a minimum of 14 days.  By Monday, Vicki thinks, Saxon should be back to normal with eating.  Since he's still pooping, our big concern is keeping the weight on him.  There's no way he can be having daily poops with barely eating anything and keep up any weight gain.  We really don't want to go with a feeding tube, so we need to figure out WHAT is going on!!!!

1 comment:

  1. I can totally relate here. Rylee just finished a 20 day course of omnicef and her appetite was zilch, natta, nothing. She still isn't eating well after finishing it so hopefully that appetite comes back soon. I hope the same wiht Saxon once he finished his course of the nasty stuff.