This is Saxon, our energetic little man who was diagnosed with Cystic Fibrosis when he was a week old. We gathered together many friends and family members and created Strides for Sax. Our mission is to raise money and create awareness for the Cystic Fibrosis Foundation to find a cure for cf. This is all about Sax and our team's efforts for the cause. As of the creation of this blog, Saxon is 21 months old, has been hospitalized several times for pneumonia, and had undergone 3 surgeries since his first birthday.

Tuesday, December 21, 2010

(Hoping for) A Merry Christmas

Well, Saxy went back on antibiotics on Thursday.  He was getting pretty congested and had a lot of green nasal discharge.  He was breathing pretty loud at night and was running a low grade fever too.  Not fun!!!  He's on Omniceph, which seems to work pretty good.  We have to get it refilled about 10 days after getting it filled because once it's mixed, it's only good for 10 days.  He seemed to be feeling better after only 2 days, so that's a positive sign!!

But over the weekend, he started acting different....  We went shopping on Sunday, and he was getting crabby every time he passed gas.  And it's large amounts of gas, like an adult would pass.  It seems to be hurting him.  He hasn't been having as many bm's since we upped his enzymes, which he's not supposed to, but they have been VERY large.  He tells us he 'pooped' every time he gasses, and he cries.  He cries in pain for hours, and is inconsolable.  I called Vicki before doing anything since we can't mix meds with everything he's on already.  His Zantac should be taking care of the gas.... Vicki thinks that he's not completely emptying his bowels, so back on a regular dose of Miralax to help move things along.  I'm supposed to call Vicki back in the morning to let her know how things are going.  If he's still gassy and upset a lot, we may have to take him in to have an abdominal x-ray to make sure there's no blockage.  We will be able to do that here with Dr Ulrich, our regular doctor. 

Here's to hoping we don't have spend Christmas at or in the hospitals!!!

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