This is Saxon, our energetic little man who was diagnosed with Cystic Fibrosis when he was a week old. We gathered together many friends and family members and created Strides for Sax. Our mission is to raise money and create awareness for the Cystic Fibrosis Foundation to find a cure for cf. This is all about Sax and our team's efforts for the cause. As of the creation of this blog, Saxon is 21 months old, has been hospitalized several times for pneumonia, and had undergone 3 surgeries since his first birthday.
Wednesday, June 2, 2010
Filling in the Blanks - Part Two!!
I left off with Saturday, cuz it just seemed that entry was getting too long... So now to Sunday. We went to the Cabin on Sunday to hang out with the family..... The Blomquists and the Jensens.....
The kids had all kinds of fun playing with the water and splashing each other, even though Saxon didn't get to go in the big pool. Mommy and Daddy didn't bring our suits, so we couldn't go in with him, and we didn't have any ear plugs for him, which he would need since he had the tubes put in his ears
The kids were having water fights in the pool, and jumping in and splashing all of the adults. The chlorine was a little strong - Raine's eyes were pretty red when she got out of the water, but it was the first swim of the year, so it will balance out...
Since Saxon couldn't go in the big pool, he decided to play in the wading pool (aka the puppy pool - Bruno Blomquist was bathing in the pool...) That didn't stop him!! He was splashing and in and out of the pool, and playing with water guns. His favorite was to sit on Mommy or Daddy's lap and try to shoot the water gun - but he would shoot himself or us in the face!! His fingers wouldn't work right to aim the gun away from himself - he had to use his thumb. But he was having a lot of fun! This was the first of what I'm sure are going to be MANY weekends at the cabin... and the kids just LOVE playing with their cousins. It's so nice they have kids close to their own ages to play with!!! And it gives me and Daddy a chance to sit back and just watch for a while.
It stormed Sunday afternoon for a while and then again Sunday night. We got home about 9pm, then the power went out. It stayed out for about an hour and a half, so we couldn't do Saxon's nebby without power!! By the time the power came back on, everyone was asleep or about to sleep, so we just did an extra thumping in the morning.
Monday was a mellow day... we pretty much just hung out around the house, did a little yard work, and went fishing. Raine had baseball practice so we didn't stay fishing too long... She has her first baseball game tonight. Can't wait!!
Yesterday, Tuesday, I got a call from Rochester. Saxon has an appointment on Thursday for a GI consult. I was concerned, since I had not heard anything back from Dr P. The person who called didn't know what the results were from the x-ray, so they had Vicki give us a call. She said the x-rays were fine, there wasn't any blockage, but that's why they were concerned about the weight loss and decreased appetite. It's possible that it's just normal 2 year old behavior, but we would prefer to be on the safe side. They said a GI specialist may find something that they missed since the tummy is their area of specialty. We have to be at Mayo 9 at 745 tomorrow morning, then we have an appointment with a dietician afterwards. Hopefully we should be done by 10, but ya never know!! I won't hold my breath on that!!