This is Saxon, our energetic little man who was diagnosed with Cystic Fibrosis when he was a week old. We gathered together many friends and family members and created Strides for Sax. Our mission is to raise money and create awareness for the Cystic Fibrosis Foundation to find a cure for cf. This is all about Sax and our team's efforts for the cause. As of the creation of this blog, Saxon is 21 months old, has been hospitalized several times for pneumonia, and had undergone 3 surgeries since his first birthday.

Wednesday, June 2, 2010

Filling in the Blanks

In spite of my efforts, I have not been keeping up with the blog quite as much as I planned on!! So here it is on Tuesday, and I'm going to backtrack to Friday. Or Thursday, actually, would be better. And we'll go from there....

So on Thursday night was our Strides for Sax team meeting. We discussed the parade a little more, still brainstorming on what we want to do exactly for our float. Then we got to the nitty gritty on the Poker Run/Car Cruise.

We will be holding our Poker Run on Aug. 28th, 2010.

This will be open to anyone 18 years of age or older.

It's open to cars, trucks, motorcycles, anything with or without wheels that can make the trek!!

The route will begin and end at the Green Mill in Albert Lea. The stops will be, in this order,
1) the Alden American Legion, 2) Wildcats of Wells, 3) TB3's of Freeborn, 4) Hartland U, and 5) Bend in the Road of Manchester.

Each tally sheet played will draw a total of 6 cards, discarding one, and will based on the best 5 card hand.

Any player can have more than one tally sheet. The tally sheet must be presented before drawing a card.

There are 4 categories for prizes: 1) High 5 card hand, 2) Low 5 card hand, 3) Most CF Spirit (most purple), 4) Early Registration.

All tally sheets MUST be turned in by 6 pm. Prizes will be awarded at 7 pm. MUST be present to win. There will also be raffle style drawings for smaller prizes.

Registration forms will be available at all Poker Run stops or by emailing Payments can be made by cash or check payable to "Strides for Sax." Payment must be turned in with the completed and signed registration form.

Live registration will begin at 11 am at the Green Mill.

All participants must sign a liability waiver.

Completed forms can be mailed to Strides for Sax - Poker Run, 1211 Frank Ave, Albert Lea, MN 56007.

So, email or pick up a form and we hope to see you there!!

And that was Thursday.

Friday, Saxon and I made the trip to Mayo by ourselves. We had to be there by 9 am for x-rays. Daddy had to take Raine to school since Sax and I left at 715 to make the appt. We got there early, so we got in to the x-ray early. Our next appointment with Dr Pianosi was at 11.  We had a few hours to kill, so we wandered down to the subway, got some breakfast, then wandered around the clinic and subways for about an hour.  That got boring, so we went back up to 16th and watched Finding Nemo.

At 10:30 we were called back to talk to the social worker.  She was checking to see how we were doing as far as insurance and everything was going.  I told her I applied for MA and MNCare for the kids, since we haven't had insurance since I left my job.  She was going to call Freeborn County and talk to our local case worker about how long our application was going to take, especially since Saxon's medications are so expensive.  She also gave Saxon a new stuffed puppy.  He usually gets a new toy when he goes over there...

Dr. P was running late.  Vicki was gone, so we didn't see her.  I turned on a movie in the exam room (they have Video on Demand there!!) and we started watching Mosters vs. Aliens.  We didn't get to see the whole movie, but we saw most of it.  It was after 12 before Dr. P came in.  We looked at Saxon's chest x-rays - they were good and more clear than at his last appointment.  They hadn't gotten a weight on him, so Dr P took him to weigh him.  He went from 12.5 kg down to 12.1 kg since his checkup 2 weeks ago with the ENT.  I told Dr P that Sax hasn't has as many dirty diaper - he's having plenty of wet ones, though.  and he doesn't seem to have much of an appetite.  Dr P was concerned.  He ordered an abdominal x-ray before we left.  He wanted to make sure there wasn't any blockage... we wouldn't get the results right away....

So that pretty much summed up our Friday.... Saturday wasn't much of anything - just hung out at home and did some cleaning and gardening....

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