This is Saxon, our energetic little man who was diagnosed with Cystic Fibrosis when he was a week old. We gathered together many friends and family members and created Strides for Sax. Our mission is to raise money and create awareness for the Cystic Fibrosis Foundation to find a cure for cf. This is all about Sax and our team's efforts for the cause. As of the creation of this blog, Saxon is 21 months old, has been hospitalized several times for pneumonia, and had undergone 3 surgeries since his first birthday.

Wednesday, August 25, 2010

Feeling Fallish

The weather is finally cooling down a bit.  It's still summer, but it's cooler, less humid.  Saxon's allergies have tamed down with it, along with his wheezing.  He's been sounding a little bit 'gunky', but I'm pretty sure that is because he's getting shook up so well with the vest.  It is doing SO much more than we could do by hand!!  He's also becoming a lot more tolerant of it - only fighting it about half the time.  But sitting still for 20 minutes for ANY 2 year old is quite the challenge!!  That's not always the case, but more often than not.  We try singing to him and with him to keep him distracted.  We are surge to tell him "Good Job" when he's sitting good.  When we're first setting everything up he tells us "no nebby" but when he's done, he says "Sassy aww done!"  It's so adorable!!

 The cooler weather is such a blessing!  I think the kids are getting restless from being indoors so much this summer.  I try to get them out into the yard to play, but we keep running into 2 major roadblocks: 1) The heat and humidity are hard for Saxon to handle and 2) The mosquitoes have been TERRIBLE this year!!  Even with bug spray on, they find a way to bite.  I was shocked to find bites on the bottoms of my feet!!!  The city spraying doesn't seem to be helping much either.  I think it was better when they sprayed by ground instead of air - it was more effective anyway!!

This morning was a bit of a stressful one on Mommy.  Raine had a dentist appointment at 11.  The kids fought before her appointment.  They fought during her appointment.  They fought after her appointment.  They pretty much fought right up until I put Saxon down for a nap and Raine went upstairs to play with Barbies.  Sax wouldn't stay in the pack and play of course, so he ended up napping on Mommy's lap for a while.

Since the temps were in the 70's and more tolerable today for Sax especially, he and Mommy and Raine walked up to Farmer's Market with our friend Erin. Raine walked pretty good, hardly any complaints.  Saxon didn't make a sound, period, until we were almost home.  That's shocking for him!! When we got home, he played nicely with his sister without fighting until Daddy got home.

Both of the kids had checkups on Monday.  I've been worried about Saxon because he hasn't been eating much lately.  He ate his Maltomeal for breakfast, a spoonful of applesauce for lunch, a little bag of gummies mid-afternoon, and 2 bites of Daddy's pizza for supper.  He HAS been drinking 3 cans of PediaSure per day now, which seems to be helping.  At his appointment at Mayo, he weighed 11.3 kg.  On Monday at his checkup, he weighed 12.5 kg.  We have to go back on the 13th for his next weigh.

We don't have too much else going on.  School has started for Mommy.  School starts in a couple weeks for Raine.  We're trying to plan another family outing or two before long - Mommy is really hoping to take the kids to the apple orchard to pick apples.  Opa and I are going to make homemade applesauce since we go through so much with Saxon's enzymes.  Plus it should be pretty fun!!!  i will keep info posted!!

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