This is Saxon, our energetic little man who was diagnosed with Cystic Fibrosis when he was a week old. We gathered together many friends and family members and created Strides for Sax. Our mission is to raise money and create awareness for the Cystic Fibrosis Foundation to find a cure for cf. This is all about Sax and our team's efforts for the cause. As of the creation of this blog, Saxon is 21 months old, has been hospitalized several times for pneumonia, and had undergone 3 surgeries since his first birthday.

Thursday, August 26, 2010

You're A CF Mom...

You know you're a CF Mom when....
  • You judge your kid's nutrition based on what's found in a diaper
  • You have permission to "beat" your child multiple times a day
  • You conversate with other CF parents and doctors about stool consistancy on a regular basis
  • You ENCOURAGE your child to eat salt and fat laden foods
  • You ADD extra salt and fat to your child's foods
  • You're excited when your child gains weight
  • You ENCOURGE your child to gain weight!!!
  • When you're grocery shopping, you look for foods with higher calories and fat content
  • You teach your child to dip his potato chips in melted butter
  • You're not worried when your kid goes into a coughing fit - you encourage him to keep on coughing
  • You make chocolate pudding using half & half or heavy cream and whole milk
  • You ADD half & half or heavy cream AND Carnation Instant Breakfast to each glass of whole milk
  • You get your AC fixed and check to see if you can write it off as a medical expense
  • You know the importance of different colors of mucus
  • YOU have to explain to the idiots in the ER exactly WHAT CF is to get the proper treatment!!
  • You get excited when a medication only costs $100.00
  • Your medical equipments costs 5 times the value of all 3 of your vehicles combined!! (Recently got his vest - retail price: $16,500!)
  • The cash price of prescriptions for your CFer, for one year, is more than twice your annual salary!! (VERY thankful for insurance!!)  And that's not including anyone else's meds!
  • You know the value of tying dirty diapers up in plastic bags EVERY TIME!!
  • You get excited every WEEK your CFer is NOT on antibiotics!! (none since the end of March - knock on wood!!)
  • Your doctor tells you to buy a stethoscope
  • Your doctor has a standing order for antibiotics for your CFer - all you have to do is call and say "I need antibiotics, these are the symptoms" and they're automatically sent
  • You have your doctor's cell phone number
  • You meet a TON of doctors in specialties you've never heard of
  • You feel like a hospital is your second home
  • You know all the shortcuts through the hospital
  • You can recommend to others what to order and what not to order from the hospital cafeterial
  • You plan your vacations based on the location of specialized Centers and travel with an envelope of medical records
Stay tuned for Part 2 of "You're A CF Mom" coming soon!!

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