This is Saxon, our energetic little man who was diagnosed with Cystic Fibrosis when he was a week old. We gathered together many friends and family members and created Strides for Sax. Our mission is to raise money and create awareness for the Cystic Fibrosis Foundation to find a cure for cf. This is all about Sax and our team's efforts for the cause. As of the creation of this blog, Saxon is 21 months old, has been hospitalized several times for pneumonia, and had undergone 3 surgeries since his first birthday.
Friday, August 20, 2010
Move it Mommy!!
We had an appointment at Mayo last Friday, the 13th. The appointment went pretty well. Since Sax is 2 now, his vitamin dosage has increased. Since he is not gaining any weight and getting really picky about eating again, we have started supplementing with PediaSure. SOOOO happy that WIC covers it and we are covered by WIC!! He had started out at 2 cans per day, but now we are doing 3 cans per day and are having the PediaSure with Fiber. That may alleviate any future digestive problems.
We just got a new nebby for Saxon!! The one we had was the travel version that is not meant for use multiple times a day every day. So Vicki got a prescription for us for a new one, which was covered by insurance since it was the first one we have requested from them.
We are getting ready for Sunday now. Strides for Sax has a float in the upcoming Kernal's Day Parade. We're not positive on what exactly we're doing for the float, but I'm sure it will come together in the end. Opa has donated money for the candy for the parade. We're also going to give out some of the teddy bears that we have left from before, and we're going to pass out more fliers for out Poker Run.
I'm starting to get a little worried about that.... really hoping we have a good turnout since we haven't gotten any early registrations. I'm at a loss of what to do... If this fundraiser is unsuccessful, I don't know if I'll have the heart left to invest my time and energy into another!! It's so frustrating, especially after all the work and money we put into these events!!! It's disheartening to think that people just don't care and that the support isn't there!! I would do anything for my little guy, but I'm just wondering what I CAN do anymore.... I don't know anymore..... I guess all we can do is to hope for the best!!!