This is Saxon, our energetic little man who was diagnosed with Cystic Fibrosis when he was a week old. We gathered together many friends and family members and created Strides for Sax. Our mission is to raise money and create awareness for the Cystic Fibrosis Foundation to find a cure for cf. This is all about Sax and our team's efforts for the cause. As of the creation of this blog, Saxon is 21 months old, has been hospitalized several times for pneumonia, and had undergone 3 surgeries since his first birthday.

Sunday, August 29, 2010

Lesson Learned

9:30 pm.  Bedtime?  Nope - it's bath time.  Why, you may ask, am I bathing my little man at 9:30 pm?  Well, we learned a very important lesson tonight.  Saxon cannot have anything to drink before doing treatments either...  We didn't think food would be a good idea, but we didn't think too much of him having about half of a sippy cup of PediaSure before doing his vest and nebby. 

Saxon and Daddy were sitting in Daddy's chair.  He did his nebby and vest... he was getting restless as usual.  Daddy was getting him to sing, and Daddy was singing the ABC's as usual.  Sax got all done with his treatments, came over and gave Mommy a high five, as usual, and went back to sit on Daddy's lap.  And let out a HUGE burp.  Followed by his PediaSure and part of his supper!!  :-(  Poor Daddy - all over his legs and shorts.  All over Sax.  Bath time.

At least he enjoyed his bath!!  And he loves his PediaSure (or P-Sure as he calls it!)

Some of his favorite words right now (with pronunciations!)

  • Raine (he says Rain-a)

  • Saxy (sounds like sassy)

  • Ducky (ducky)

  • PediaSure (pee sure)

  • Grandpa (apa)

  • popcorn (pa cone)

  • sorry (sa wee)

  • Abby bite! (clear as day, says abby bite!!)
By the way, Abby only nipped him once - whenever he gets his butt swatted, or pinches his finger, or trips, or anything, he says Abby bite.  If he breaks something, it's Abby broke.  Although, this last time when he broke the wheel off his monster truck, it WAS Saxy broke.  We'll see how long until it's Raine-a broke! lol!!

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