This is Saxon, our energetic little man who was diagnosed with Cystic Fibrosis when he was a week old. We gathered together many friends and family members and created Strides for Sax. Our mission is to raise money and create awareness for the Cystic Fibrosis Foundation to find a cure for cf. This is all about Sax and our team's efforts for the cause. As of the creation of this blog, Saxon is 21 months old, has been hospitalized several times for pneumonia, and had undergone 3 surgeries since his first birthday.

Monday, January 23, 2012

Road to Recovery

We got to go home late Thursday morning.  I was too tired to update then and have been trying to catch up on sleep and taking care of a crabby Saxy since we've been home.  Dr Cofer said they removed a lot of polyps and 'gunk' from his sinuses, put tubes in, took a sample from and flushed his lungs, and are culturing the samples from his lungs and his polyps.  Once the cultures come back they will decide what antibiotics to put him on.  She figured he will probably be on TOBI again for a while. 

Sax is having some discharge from his ears still and a little bleeding from his nose.  He's supposed to be taking it easy, but what 3 year old does that???  When he's playing too hard, or gets worked up and crying too much, it makes his nose bleed.

Some of his meds have changed for now:

At least until his next check up, no:
MADdy nasal rinse

New meds:
Saline nasal spray (4x per day)
Pain reliever/fever reducer (every 4 hours)
Medicated ear drops (5 drops, 2x per day, for 5 days)
Albuterol Neb increased (4x per day)

He's supposed to go back for a checkup in 2 weeks, then a repeat audiogram in 6 weeks.

Sax took his Buppy in with him for surgery, so Buppy got a new 'collar' for surgery (since the wrist band wouldn't fit his arm.)  When the nurse took the IV out of Sax's hand, though, he didn't put pressure on the hole right away and blood gushed across Buppy's back.  I got most of it cleaned up.  Buppy is going to need a bath.  But here is a picture of him and Buppy snuggling on the couch once we got home....

Hopefully, once the swelling goes down from his surgery, it won't look like he has 2 black eyes all the time anymore.

Hopefully he'll be healed enough to go outside and play too.  We've finally gotten snow!!  Can't wait to take the kids sledding and build a snow fort :)

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