This is Saxon, our energetic little man who was diagnosed with Cystic Fibrosis when he was a week old. We gathered together many friends and family members and created Strides for Sax. Our mission is to raise money and create awareness for the Cystic Fibrosis Foundation to find a cure for cf. This is all about Sax and our team's efforts for the cause. As of the creation of this blog, Saxon is 21 months old, has been hospitalized several times for pneumonia, and had undergone 3 surgeries since his first birthday.

Thursday, January 26, 2012

You're a CF Mom (part 2!)

Here's part 2 of the CF Mom series - lol!!

You know you're a CF Mom if................

You can talk about the smell, color and consistency of poop while you're eating and not think twice about it

You can make recommendations from experience that can greatly improve others' first hospital stays

When you go on a trip, you have to have a separate bag for all of your CFer's meds, and it's about the size of your CFer's suitcase

You feel sorry for the lab people at the clinic - they don't know what they're in for when they open that stool sample!!!

You kind of fear potty training because you KNOW how awful those poopy training pants are going to be to deal with!!!

You babysit another little one, and you start looking for their enzymes and meds at feeding time

You forget what it's like NOT being a CF mom!

You try giving the receptionist at the doctor's office your CFer's info instead of yours because it's just a habit.

You have more doctors' phone number programmed in your cell phone than you have family members.

You can drive the 1 hour drive to see your CF team with your eyes closed.

You don't know your child's weight in pounds, just kilograms, since that's how the clinic weighs him.

You get really excited when your CFer decides to eat a stick of butter like a banana :)

You don't know the everyday, common names of a lot of medications since your child has been on so many generic variations that the technical name is easier to remember.

You 'sniff' strangers the first time you meet them to determine if they smoke or not.

At doctor appointments, your CFer's doc hands you a list of meds for you to look over because reading off the list takes too long and too many are difficult to pronounce.

You're excited when your CF is only on 5 medications.

You send your CFer to someone else's home with a 'care sheet' so they know when/how to administer meds, even if they're only there a few hours.

You have your CFer's clinic number memorized.

When people ask how your CFer is, you ramble on using medical terminology about throat cultures and medications and forget the other person's life doesn't revolve around hospitals/clinics.

You have extensive experience fighting with insurance companies - and generally end up winning.

You become a respiratory illness expert.

No comments:

Post a Comment