This is Saxon, our energetic little man who was diagnosed with Cystic Fibrosis when he was a week old. We gathered together many friends and family members and created Strides for Sax. Our mission is to raise money and create awareness for the Cystic Fibrosis Foundation to find a cure for cf. This is all about Sax and our team's efforts for the cause. As of the creation of this blog, Saxon is 21 months old, has been hospitalized several times for pneumonia, and had undergone 3 surgeries since his first birthday.

Thursday, May 3, 2012

"Going" Nowhere (more crappy conversation)

**Disclaimer** this will be another "toxic" conversation about the joys of cf poopies - Nose plugs required beyond this point!!

Last night we implemented the new plan of attack.  Sax was drinking the Golytely with his PediaSure.  After Daddy got home and we'd eaten supper, he had a small, very mucusy/stringy poopy.  A little later we gave Sax his first enema.  He didn't fight us too much - he laid on a towel on the bathroom floor, Daddy held his arms and legs in place, and lucky Mommy got to administer it :/  Not on my list of favorite things to do, but right now I'd do about anything to make my little man better.

After a few minutes of laying on the floor, Sax wanted to try sitting on the big potty - until he got scared.  So we put him on the potty chair.  He did end up getting some out - but just a little more than the amount of liquid we put in :(  To get him to stay sitting on the potty a little longer, I decided he needed a haircut.  The weather is getting warmer anyway, so it's time for a summer shave.

Posing to show off the new cut :)

Daddy bribed Sax with beef jerky to get him to drink more of his "kool aid" plus he drank another whole glass of PediaSure.  We thought for sure we'd be up all night cleaning up diapers!  While snuggling with Daddy, Sax was acting like he had to go again.  Poor little boy went to sit on the potty even though he'd already gone a little in his pull up - but it wasn't what we expected to find.  Instead of super stinky poo, we found a ball of mucus!  I hate to think how much of what we saw on the scan is actually just that super sticky nasty mucus!!!

So there was no progress made the rest of the night last night.  For as much 'stuff' that is crammed/packed in there, he should be pooping a whole lot more than what he's done!  I still don't know how he's not in pain!!!  He's still eating decent!  If by 3pm he hasn't made more progress, then we go the next step and we'll be at Mayo tomorrow.

From the motherly standpoint, this is honestly freaking me out.  There are so many complications that can arise from intestinal blockage.  They are saying he doesn't have any blockage from what they can see, but with how incredibly bound up he is, I'm not completely sure.  It sucks anyway when there is something wrong with your child and you can't do anything about it, even if it doesn't seem to be causing him any pain or discomfort at this point beyond a low-grade fever.  But with everything that happened with Baden and his intestinal blockage..... enough said...

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