This is Saxon, our energetic little man who was diagnosed with Cystic Fibrosis when he was a week old. We gathered together many friends and family members and created Strides for Sax. Our mission is to raise money and create awareness for the Cystic Fibrosis Foundation to find a cure for cf. This is all about Sax and our team's efforts for the cause. As of the creation of this blog, Saxon is 21 months old, has been hospitalized several times for pneumonia, and had undergone 3 surgeries since his first birthday.

Friday, May 4, 2012

Sax's First Tube (hoping for a crappy day)

Well, we are at the hospital, which means there was no progress at home with his Golytely and enemas.  Sax didn't want to come here (we didn't really either, but as a parent you do what you gotta do for your kids).  On the way he had a few (excuse the term) "sharts" but nothing other than that. 

The plan for inserting the ng tube was for Sax to sit up with one of us holding him and Vicki would just slide it right in his nose and down to his tummy.

Yeah right! Our kid isn't going to be that easy!!!

It turned into me wrapping him (swaddle-like) in a blanket, Scot holding his legs down, a nurse holding him from behind, and me pinning down his hands while he kicked, screamed, fought, and spit at us!  Man does this little boy have spunk!!!!

We have the tube in now and have administered 4 oz of Golytely through it.  Sax has even been helping to insert it into the tube.

Every half hour, we're going to insert another 2 1/2 oz, so hopefully we'll be making progress soon!!

Right now, him, Daddy, and Buppy are snuggling on the couch watching Cars.  This exam room is pretty much gonna be our room as long as we're here today. 

At least we have a beautiful view.

Where the river is in this picture is pretty close to where our Great Strides walk is going to be tomorrow

Please keep him in your prayers....

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