This is Saxon, our energetic little man who was diagnosed with Cystic Fibrosis when he was a week old. We gathered together many friends and family members and created Strides for Sax. Our mission is to raise money and create awareness for the Cystic Fibrosis Foundation to find a cure for cf. This is all about Sax and our team's efforts for the cause. As of the creation of this blog, Saxon is 21 months old, has been hospitalized several times for pneumonia, and had undergone 3 surgeries since his first birthday.

Wednesday, May 2, 2012

The Struggle

It's barely the beginning of Saxon's first full day on Golytely and we're already fighting.  

He wants his P-sure, not the "grape kool aid" and he's being quite vocal about it.  I'm bribing him with his new favorite snack to get him to cooperate - marshmallows!  There's not much for calories in them, but hey, whatever works!!!!!

He's still running a mild fever, but the doctor's office said that's normal with this high of a level of constipation.  Sax is also being super whiny and clingy, which may be because of tummy ache.

He hasn't gone yet today, but he's starting to get a little gassier.  In spite of the fighting, he has drank almost 1/2 a glass of his Golytely... I'm wondering how to get the full liter down....

It's gonna be a long - and hopefully "crappy" - day!

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